Study Details
IONIS: A Study Drug to Improve Symptoms of FUS-ALS Patients
(IRB#: IRB_00144685)
IONIS is a potential drug to reduce the body's production of the FUS protein that may contribute to ALS. Scientists and doctors need to learn the effectiveness, safety, tolerability, and breakdown of this medication to improve the symptoms of people with ALS.
- All genders
- Over 7 years old
- Volunteers with special conditions
- In Person
- Paid
Who can participate?
Gender: All genders
Age: Over 7 years old
Volunteers: Volunteers with special conditions
Location: In Person
Inclusion Criteria
- Ages 12-65
- FUS-ALS diagnosis
- Patient has an informant or caregiver
- In-person at the University of Utah
- 5-year commitment
Will I be paid for my time?
Yes
IRB#: IRB_00144685
PI: Summer Gibson
Department: NEUROLOGY
Approval Date: 2022-01-20 07:00:00
Study Categories: Brain Health Studies
Specialties: Neurology