Study Details
Improving Dementia Care with Hispanic/Latino Communities
(IRB#: IRB_00177351)
Dementia is a disease that affects a persons memory, behavior, and movement. This study will co-design a Spanish-language advanced care planning (ACP) intervention for Hispanic/Latino people living with dementia and their care partners. The study will then test the impact of the intervention on Spanish-speaking Hispanic/Latino people living with Alzheimer's disease or related dementias. The participants who co-design the intervention will meet in groups on Zoom (a way to meet using technology such as a computer). Being in this part of the study requires meeting about 8 times over about 3 years. The study will then test the co-designed Spanish/Latino Alzheimer's disease or related dementia intervention with the specific population.
- All genders
- Over 18 years old
- Healthy Volunteers
- From Home
- Paid
Who can participate?
Gender: All genders
Age: Over 18 years old
Volunteers: Healthy Volunteers
Location: From Home
Inclusion Criteria
- 18 years and older
- A person with at least an early stage of cognitive decline and their caregiver
- Dementia experts working full-time in the field of study for over 1 year
- Hispanic/Latino
- Spanish speaking
Exclusion Criteria
- Previous participation in an advanced care planning intervention (ACP) for dementia
- No access to the internet
- No access to a technology device such as a computer
Will I be paid for my time?
Yes
IRB#: IRB_00177351
PI: Sara Bybee
Department: NURSING RESEARCH
Approval Date: 2024-04-15 20:46:00
Study Categories: Brain Health Studies, Mental Health and Well-being Studies
Specialties: Neurology